July is widely celebrated as Disability Pride Month in the U.S. This year, the month marks the 27th anniversary of passage of the Americans with Disabilities Act on July 26, 1990. The ADA, a landmark U.S. civil rights bill for people with disabilities, was enhanced in 2008 by the ADAA, Americans with Disabilities Act as Amended.
At least three pieces of legislation recently introduced in Congress threaten the rights and benefits of people with disabilities. The American Health Care Act, renamed the so-called “Better Care Reconciliation Act” by the Senate, would have removed millions of people from Medicaid, the health insurance of millions of people with disabilities.
For instance, the National Alliance on Mental Illness NYC reported that 38 percent of people using its services would be cut from access if this bill were passed. NAMI provides psychological education, research and support for people with emotional and psychological disabilities and their families. (Email from naminycmetro.org)
Most types of health insurance other than Medicaid and Medicare have lower or no benefits for psychiatric medical services when compared with non-psychiatric medical care — a very discriminatory policy. Fortunately, this death threat got a reprieve when the Senate announced it lacked the votes for passage.
Two other punitive bills are currently in the House of Representatives: the ADA Education and Reform Act of 2017 (HR620) and the ADA Lawsuit Clarification Act of 2017 (HR1493). Their provisions would delay for six months the ability of wheelchair users and other people with disabilities to secure access to various services through the “reasonable accommodation protections and rights” stipulated in the ADA. Both bills would impose a 60-day period to notify an owner/operator of a problem and 120 days for them to fix it.
The disabled community has responded to these attacks with resistance.
In Washington, D.C., activists led by ADAPT (Americans Disabled for Accessible Public Transit) held a die-in at the office of Senate Majority Leader Mitch McConnell (R-Ky.) to protest the cuts to Medicaid on June 22. When the Senate adjourned for a recess, the activists began occupying local offices of some senators.
In Colorado, at Sen. Cory Gardner’s Denver office, ADAPT activists staged a sit-in for 59 hours until they were arrested. They were finally released July 1 after an additional 30 hours in custody.
ADAPT was central to the famous 1990 “Capitol Crawl” in Washington, D.C. Over 60 activists abandoned their wheelchairs and mobility devices and began crawling up the 83 stone steps to the U.S. Capitol building entrance, as people chanted “What do we want? ADA! When do we want it? Now!” The ADA was passed later that year.
Disability rights activists speak out
Renée Imperato, a Vietnam veteran with several disabilities, including post-traumatic stress disorder, told Workers World of the extra dangers facing people of color and LGBTQ people with disabilities:
“The safety of disabled people of color and disabled lesbian, gay, bisexual, transgender and queer people, especially those who use crutches and wheelchairs, is compromised by their skin color and their expression. All people have the right to self-defense by any means necessary. However, often disabled people have more limited options in how physically we can defend ourselves, especially disabled people of color and disabled LGBTQ people, who are the most targeted.”
Imperato added: “The scandalous non-application of the ADA at special events like concerts and sporting events is a fraudulent violation of the disabled’s right to equal access. We demand that all wheelchair ramps be inspected and replaced or retooled when they no longer function.”
Wheelchair user and labor and disability rights activist Mary P. Kaessinger told Workers World of her continuing difficulty in accessing public transportation: “I ride a scooter because of my MS [multiple sclerosis]. When using the New York City subways, one of the biggest challenges is the platform gap. Eighty percent of the time, the level of the subway car floor is 2-to-3 inches higher than the platform.
“I can use the subways only because other passengers, total strangers, recognize my plight and literally lift me and my scooter into the subway car. While some of the service on the MTA buses and trains has improved over the last 20 years, the MTA still has far to go. At least the buses don’t always drive by any more and pretend they don’t see you. But as for subways, there are too few elevators, and it ought to be a priority to maintain the ones they do have.
“There’s nothing more devastating than being stuck underground with no way up.”
Kaessinger concluded: “We demand full access to all buildings and all modes of transportation, and that everyone — the government, Wall Street, big corporations, bosses and all individuals — respect our rights and stop messing with the ADA and threatening our fundamental right to access. We are not begging for a handout. We do not seek or appreciate pity. We are demanding our human rights.
“We do need services and assistance. With it, we are productive people, raising families and contributing to community life.”
And more resistance
This year, a group of disability organizations and disabled residents brought class action lawsuits in state and federal court, charging that New York City’s subway system is one of the least accessible public transportation systems in the U.S. The city has the lowest accessibility rate — 24 percent — among the 10 largest transit systems.
More than 75 percent of the city’s 472 subway stations do not have elevators, lifts or other methods to make them accessible for people who use wheelchairs and mobility devices or who otherwise can’t use stairs. The lawsuits point out that of the approximately 112 stations that are designated as wheelchair-accessible, only 100 currently offer working elevator service for passengers traveling in different directions. (New York Times, April 25)
Almost three decades after the “Capitol Crawl” people with disabilities continue to have to fight to be treated with the same respect and rights as able-bodied individuals.
One of the first acts of the Hitler regime, which murdered many millions for the crime of being different, occurred on July 14, 1933. The “Law for the Prevention of Progeny with Hereditary Diseases” was instituted, which called for the mandatory sterilization of all people with diseases considered hereditary. It specified many disabilities, including mentalillness. The Nazis’ Big Lie was that people with disabilities were of “less value.”
The escalating terror and attacks in the U.S. against people of color, women, LGBTQ people and people with disabilities have been met with escalating resistance from the oppressed who plan to sweep today’s Big Lie — “lesser value” bigotry — into the dustbin of history.
Che Guevara, one of the greatest champions of the oppressed in human history, was also a person with a disability
— asthma. He once proclaimed: “If you tremble at indignation at every injustice, then you are a comrade of mine.”
This month, you can join a July 9 Disability Pride parade in New York City organized by a coalition of disability rights groups. The parade gathers at Union Square at 10 a.m., with an 11 a.m. march, ride and roll up Broadway to Madison Square Park for a Disability Rights Festival from 12 noon to 3 p.m. Parades this year are also planned in other cities, including Chicago and Boston.
Edward Yudelovich is a person with emotional and one-sided hearing loss disabilities.